Thanks to all those who took part in our Vestibular Support Group this past Saturday. Our team was joined by almost triple the amount of attendees as the 1st VSG and it was an overwhelming success. Our attendees were engaged and interactive and openly shared their experiences and struggles.
The attendees had a wide range of disorders requiring vestibular rehabilitation, including neurotoxicity, acoustic neuroma, and positional vertigo, among others. So many attendees had the same experience of seeing numerous doctors in various fields who were unaware of vestibular rehab. Some had tried medications with varied results, but all who have been patients or are patients say the same thing: the exercises provided at therapy WORK!
One patient, N*, is a current patient and states that the isolation factor of her vestibular disorder is the most difficult part for her. When her loss of balance and dizziness increased, she was unable to leave the house for long periods of time and do the things she loves. When she began therapy, she had “never seen such improvement…This improvement has allowed me to live, and to live independently.”
As well as the isolation factor, attendees were often frustrated when they had set backs during therapy, which many of them did. They discussed how there would be weeks of marked improvement and then suddenly, for no apparent reason, there would be a set back. The most important thing to do when faced with a set back is to persevere and continue the exercises, agreed the patients. Do not quit therapy because of a set back. Continue with your exercises and you will see an improvement.
A date for the next Vestibular Support Group has not yet been set, but will be announced as soon as it is. In the upcoming Support Groups, we will be bringing in guest speakers, inviting other medical professionals who deal with vestibular disorders, and preparing surveys for the support group so that we can have your ideas for topics.
We hope to see you there!
*First and last names will not be used for privacy reasons.