Posts Tagged ‘Vestibular Support Group’

Supporting Your Spouse When they Have a Vestibular Disorder

1. Communicate with your spouse. Vestibular disorders are invisible, so you may not be able to see symptoms, which can be frustrating. It is important to openly communicate with your spouse, listen to what they are going through, ask questions and explain how YOU feel.

2. Go to doctor’s appointments with your spouse. This will give you a better understanding of the prognosis of this balance disorder and an opportunity to ask questions your spouse may not be able to answer.

3. Go to support group meetings with your spouse. This will give you a chance to meet other individuals who are playing the role of the supporting spouse.

4. Make sure YOU have a support system. Whether it be friends, family, or other spouses like yourself, it is important that you have someone that you can vent to.

5. Take time out for YOU. Being someone’s support system is tiring. Make sure to go golfing, get that massage or take that shopping trip that rewards you!

Dr. Hain and the 3rd Vestibular Support Group

Our most recent Vestibular Support Group, held at LifeStyle’s office in Chicago, increased in attendance and we had our first guest speaker, Dr. Timothy Hain. Chicago’s “dizzy doctor”, as many patients call him, is a neurologist with Chicago Dizziness and Hearing as well as a Professor of Neurology and Otolaryngology at Northwestern University Medical School.

Dr. Hain began his discussion with an overview of the different definitions of dizziness and the reasons for dizziness. Patients go to doctors for many reasons and use the term “dizziness” and it could refer to many things, whether it’s vertigo, or a sensation of motion, ataxia, an unsteadiness, or lightheadedness/faintness.

dizzyAlmost 50% of dizziness stems from your ear, but that means that about 50% of dizziness stems from something else (including brain trauma, psychological reasons, and other medical reasons).

Dr. Hain then gave an overview of BPPV, Meniere’s disease, vestibular neuritis and bilateral vestibular loss. He gave great insight and even case examples about the different vestibular disorders. Dr. Hain discussed studies that are being conducted on mice (no humans yet) to regenerate damaged, non-working hair cells within ones ear – which are the cells that are the sensory receptors for the vestibular system – humans are not able to regenerate damanged cells while birds are able to.

Dr. Hain also discussed the use of Betahistine in the treatment of Meniere’s Disease – while not FDA legal in the US, the Europeans widely use the product. For an overview and Dr. Hain’s review of the drug, please go to: http://www.dizziness-and-balance.com/treatment/serc.html

For more information on Chicago’s VSG, please send an email to: info@balancechicago.com.

Reminder: Vestibular Support Group on Saturday!

Our Vestibular Support Group will be held this Saturday, August 15th at LifeStyle: 3130 N Lincoln Ave, Chicago, IL 60657. We already have a fantastic RSVP list but would like to have more. Dr. Timothy Hain, a renowned neurologist from Chicago Dizziness and Hearing, will be speaking  at the meeting. Bring your family, friends, and support systems. Light refreshments at 11:30am, meeting starts at 12:00pm.

For more information or to RSVP, contact info@balancechicago.com.

Dr. Timothy Hain to Speak at 3rd Vestibular Support Group

Dr. Timothy Hain, neurologist and otolaryngologist with Chicago Dizziness & Hearing, will be joining our 3rd Vestibular Support Group as our guest speaker. We are very excited to

“Dr. Hain is locally known as the “Dizzy Doctor”. Dr. Hain’s clinical activities naturally “revolve” around evaluating and treating dizzy individuals as well as persons with hearing loss, tinnitus and hyperacusis.” (CDH’s Web site: http://www.dizziness-and-balance.com/cv/hain/hain-t.htm)

Dr. Hain was recently interviewed by NPR concerning BPPV: http://www.npr.org/templates/story/story.php?storyId=103463398

3rd Vestibular Support Group

Please join us at our 3rd Vestibular Support Group on Saturday, August 15th. Individuals dealing with or have dealt with vestibular disorders, such as BPPV, neurotoxicity, Meniere’s Disease, labrynthitis, vestibular neuritis, to name a few, are invited to take part in the support group in the heart of Chicago. Bring your support system as well!

Meet other vestibular disorder sufferers and learn more about your disorder. Topics of discussion will be announced shortly.

Refreshments will be served at 11:30am and the meeting will begin at 12:00pm and will last for about an hour. This support group is FREE of charge!

Please RSVP to: info@balancechicago.com or 773-525-5200.

Visiting your Vestibular Disorders Doctor

At our support group we often hear our vestibular disorder sufferers discuss the difficulties that they faced during initial visits to doctors or healthcare providers. Often times doctors are unaware of vestibular disorders and qualify the symptoms as other disorders.

The below steps may seem like a long list, but after listening to the frustrations that some of our support group members dealt with, it may be well worth going through at least Steps 1, 2 and 7.

Step 1) See an ear and throat doctor first if you suspect that you may have symptoms of vestibular disorders (For Symptoms: http://www.vestibular.org/vestibular-disorders/symptoms.php). Most of these type illnesses originate in the head and neck regions, so before seeking treatment you first can get a definite diagnosis from an ENT.

Step 2) Visit a neurologist who specializes in various diagnosis approaches to vestibular disorders. He/she can determine if there is a specific brain cause of the disorder rather than an ear or throat link.

Step 3) Contact an eye doctor and/or neuro-ophthalmologists to ensure that there may not be a defect in the eye and brain connection that is worsening your vision, thus causing balance problems.

Step 4) Detect emotional or mental problems causing vestibular disorders by visiting a psychologist…The psychologist can run tests and provide therapy…Visit a psychiatrist to take a medicinal instead of sometimes more risky surgical avenue.

Step 5) Determine if a hearing difficulty is not the specific cause of any diagnosed vestibular disorder. An audiologist can administer a test to detect any hearing impairment that may be causing a physical imbalance.

Step 6) Make an appointment with a neurotologist. The neurotologist gives more specific information on the origins of the disorder and what course of action needs to be taken.

Step 7) Communicate to a physical therapist any pain you may be suffering from as a result of any treatment for vestibular disorders. They can…rehabilitate a disorder sufferer as well as reduce any pain.

http://www.ehow.com/how_2122223_see-vestibular-disorders-doctor.html

3rd Vestibular Support Group Meeting

Keep an eye and ear open for the next Vestibular Support Group meeting held in our office. This group supports patients and families who have been affected by vestibular disorders. We will be announcing the date next week!

Please note that this is a FREE support group. For a vestibular support group near you or online: http://www.vestibular.org/support-groups/find-support-group.php